Thank you for sharing! I feel this way quite often. I am always saying to my husband “I want to be a real boy”. Like in Pinocchio when he is tired of being made of wood? I miss my old self. 🤷♀️
My housemates got tired in the first month after my diagnosis. "Hey guys, I learned today that..." [Eyes glaze over, then they start furtively look for a way to change the subject.] One friend told me I'm obsessed with this stuff, and in a way they are not wrong. But the sad reality is that, barring a miracle or a cure, I will be living and dealing with PD the rest of my life -- it IS my new reality. Every day is a different challenge, and I will never be the same guy I was 5 or 10 or 20 years ago. So, yeah, PD will inevitably be part of my writing and speech. But sometimes it helps a lot to focus on other things -- like the blossoms on my apple tree or the new music from our worship team, The Elim Arrival. (Not-so-subtle plug) Guess I better get back to work now.
Dear Emma, thanks again for vocalising so eloquently what it's like to have IT!
I had a similar experience in the beginning; watching, reading, studying every last word on the damned disease. Nowadays I just read your blog. I'm glad l found you, we're not alone! Sending love ❤️
Oh so true!! I wanted to know *everything* about M.E. I wanted to know about any celebrity with it, like that would make it easier to put up with. I wanted to know all the statistics. And then one day - I just wanted to read about something else, to think about other things, to look out instead of in.
Thank you for sharing! I feel this way quite often. I am always saying to my husband “I want to be a real boy”. Like in Pinocchio when he is tired of being made of wood? I miss my old self. 🤷♀️
Absolutely! Thank you xx
My thoughts exactly! Thanks for stating it all so eloquently.
Thank you x
You KNOW we'd love to hear about the man you saw trying to walk a rabbit on a lead.🙂 But you don't have to tell us.
😅
My housemates got tired in the first month after my diagnosis. "Hey guys, I learned today that..." [Eyes glaze over, then they start furtively look for a way to change the subject.] One friend told me I'm obsessed with this stuff, and in a way they are not wrong. But the sad reality is that, barring a miracle or a cure, I will be living and dealing with PD the rest of my life -- it IS my new reality. Every day is a different challenge, and I will never be the same guy I was 5 or 10 or 20 years ago. So, yeah, PD will inevitably be part of my writing and speech. But sometimes it helps a lot to focus on other things -- like the blossoms on my apple tree or the new music from our worship team, The Elim Arrival. (Not-so-subtle plug) Guess I better get back to work now.
Absolutely xxx
Dear Emma, thanks again for vocalising so eloquently what it's like to have IT!
I had a similar experience in the beginning; watching, reading, studying every last word on the damned disease. Nowadays I just read your blog. I'm glad l found you, we're not alone! Sending love ❤️
Thank you xx
Unapologetically avoids internet
hahah! best approach :)
Brilliant as usual Emma!
Thank you xx
You're always there when I need you.
😘😘
Oh so true!! I wanted to know *everything* about M.E. I wanted to know about any celebrity with it, like that would make it easier to put up with. I wanted to know all the statistics. And then one day - I just wanted to read about something else, to think about other things, to look out instead of in.
Totally!
Brilliant piece Emma. Spot on!
Thank you xx