23 Comments
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Nick Calder's avatar

O oh dear lovely Emma - I wept (ofc) reading your elegantly clear eyed analysis of the way this fucking monster gnaws at our very soul but leaves us looking ( to the casual observer) just fine.

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Emma Stubbs's avatar

😘😘

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Mar 12
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Emma Stubbs's avatar

Thank you for such a wonderful reply. I am delighted you could embrace the Buddhist approach, I lean on a variety of spiritual supports - I wonder if this might increase as I decrease.

I love your point about PD being a different type of pain, both physical and mental simultaneously.

Thank you for your insight and lovely support. Hugs and love to you xx

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neena maiya's avatar

I’ve been trying to understand what chronic pain is doing to a few of the people I love. I’m reading this slowly because it’s something I have to take in bit by bit, it’s too difficult to read all in one.

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Emma Stubbs's avatar

Love to you and your loved ones xxx

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Heather Cawte's avatar

Emma, this is perfect.

Although I so wish you didn’t know your subject so intimately xxx

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Emma Stubbs's avatar

Thank you and it could be a lot worse....I have you guys to keep me smiling 😘

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Roman S Shapoval's avatar

Do you try to avoid blue light at night? Artificial blue light is a huge driver of neurological disease.

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Emma Stubbs's avatar

Thank you Roman, I have read your posts and Gary Sharpe’s I think we have spoken on this topic before.

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Roman S Shapoval's avatar

Thanks Emma.

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neena maiya's avatar

I didn’t know this, Roman. 😔

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Roman S Shapoval's avatar

Thanks Neena. Yes blue light depletes dopamine, especially artificial light.

If PD is a condition where more dopamine is needed, it follows that supporting natural dopamine secretion can be attained by getting red/infrared and full spectrum sunlight, which regenerates the nervous system.

Here's some more info:

https://romanshapoval.substack.com/p/why-parkinsons-begins-in-the-eye

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neena maiya's avatar

Thank you, Roman. I will read this now.

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Nick Calder's avatar

I’m sorry but what are you on? Do you have Parkinson’s? Do you really think it is helpful to dump a piece of techno dross like that in response to Emma’s writing..? FFS..

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Emma Stubbs's avatar

Thank you, Nick for your championing and support.

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Roman S Shapoval's avatar

Thanks Nick for your kind comment. My family member has it. I can send you research if you're interested. Check out Gary Sharpe on Substack as well.

Btw this will be the last time I leave a comment here. I don't need to be disrespected and told the insights offered are rubbish. The wise only need to hear a word, and understand the message. I hope you can hear mine.

If you want the research, you can send me a message to info@thepowercouple.ca

Take care.

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Emma Stubbs's avatar

I am sorry you feel this way, Roman. As you are aware many people feel it is appropriate to offer us ‘advice’ on our illnesses, and sometimes it makes us ultra sensitive. I think you will understand that it is an incredibly frustrating disease and there is nothing more we’d like than solutions. Your research and insights are, of course, valid and worthy to be listened to. Many people come to my writing as an escape from the solution based approach and are seeking an emotional expression. I value your presence on my pages and do hope that you will stay. With love Emma xxx

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Roman S Shapoval's avatar

Thank you very much Emma for your kind comment.

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Sarah's avatar

...wonderful even if you don't feel it! 😘

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Sarah's avatar

Hi dear Emma

Well. Yes. But what then? It's still our one precious life and l want to make the most of it, even though it is bloody hard sometimes. I hardly ever think about who l was, what l could once do. Because it makes me sad. So nowadays l just get on with it. I'm trying to become a saint because they suck it all up and simply smile in a calm, saintly manner. Must be my Catholic roots poking out. Anyway, sending lots of love to the Emma you have become. You're wonderful if if you don't feel it 🥰

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Emma Stubbs's avatar

Thank you, lovely Sarah xxx

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Andi's avatar

Brilliant and pithy as always. I was about to highlight the pithiest take-aways then realized the piece is one huge takeaway. Thank you wise Emma for so elegantly and eloquently capturing the realities of this life we never asked for but somehow manage to soldier through.

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Emma Stubbs's avatar

Thank you, Andi xxx

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