Issue #1 - Easter Hangover š£š«
Domesticity through gritted teeth & a dash of Parkinson's.
In this issue:
Dopamestic ~ Parkinsonās at home
Itās 5 oāclock somewhere ~ weekly tipple
Dear-E ~ your questions answered
But did you die? ~ this week in parenting
Petās Corner ~ send your photos
Welcome
Well, hereās a new thing Emma has made!
You, my delightful readers, do send me lots of emails about domestic things.
How do I cope with being a mum and having PD? The answer is complex at times but always add wine.
How do I cope with a neurotic rescue dog and when will we get more pictures of her? (I am beginning to think you are only here for the cute dog and not me š )
How many stairs do you have to descend to leave your flat? 15. OK no one has actually asked that question but Iām covering all bases.
So, instead of attempting to reply to everyone and repeat myself, I have created this mini-magazine on Domestic Bliss - domesticity through gritted teeth and a dash of Parkinsonās.
I really hope you enjoy and please, please share and leave comments and give me your suggestions.
with love
Emma
P.S. This is free every second Sunday but if you want the FULL experience consider becoming a paid subscriber.
Dopamestic
This weekās domestic hazard.
I want to talk about door handles. Oh yes, I do insist on bringing the most exciting topics to your inbox. Those sticky-outy dangerous bastards are the bane of my life.
For a little context, my flat is a reasonably compact space. One narrow corridor from the entrance where most rooms lead off. Each door has a handle that protrudes about 2 inches from the door. These are lever-style handles or murderous sleeve catchers.
Every door I pass through I get brutally attacked. Every. Bloody. Time. Yes, itās partly poor design and partly parky bouncing off walls. But it is a hundred percent annoying, dangerous and a constant reminder of how poorly I move through spaces. It is a rented apartment which means we are restricted on what improvements we can make.
It is hard for people who donāt own their homes to make the necessary adaptions to cater for chronic illnesses. Even if you have a sympathetic landlord, they do exist - somewhere - then there is the cost.
A quick Google shows that here in the UK getting a handrail fitted in your shower can cost anything between Ā£80 to Ā£150! Now Iām pretty handy at DIY so pricing one to fit myself would still come in at Ā£50 or more plus the potential mishaps of me fitting it myself. (Yes, I know youād love to read about that one!)
We are a family of four living on one full-time public sector wage and whatever I can contribute via writing. Finding the amount of money needed to make our home safe is a big stretch, even if our lease allowed it.
Iād love to know how people cope with low incomes and benefits to make their living spaces habitable for their illnesses. Please comment and share your thoughts on this.
In the meantime, Iām seriously considering pool noodles to cover the door handles.
Itās 5 oāclock somewhere
Your weekly tipple.
Orange Blossom Bellinis
Ingredients
175ml chilled blood orange juice
1 tbsp orange flower water
chilled champagne or prosecco
Method
Mix together orange juice and orange blossom water, then divide between 6 cocktail glasses. Top up with champagne or prosecco and serve with nibbles like olives and salted almonds.
(You can download the picture (click on it & it will take you a large version) and do what you will, as it was created by my fair hand.)
Dear-E
Emma solves your problems.
Dear E,
What is the correct reply to the comment ābut you donāt look like you have Parkinsonāsā?
Yours
Frustrated
Dear Frustrated,
When someone asks this question, you must understand that they are in possession of a terrible affliction - twattery. And yes, the natural response is to blast them to Mars.
However, we must assert our higher selves, draw a deep breath and take the following steps:
Take their hand - preferably with your tremor/dystonic/dyskinesia one
Look into their eyes
a) explain that PD is often referred to as an invisible disability and that the symptoms arenāt always obvious to the onlooker.
b) tell them, very softly, in a barely audible voice*, that they can fuck-right-off.
*Optional: You can inform them that a soft voice or loss of voice is also a symptom.
Yours helpfully
E
But did you die?
This week in parenting.
18:47 Friday Evening
āMUM!ā
āYes, love?ā
āDO I TELL THE ARMY I HAVE A TATTOO?ā Lily* yells - at that volume she probably just has.
āWhat? Come here and what are you on about?ā Iām confused, I thought Friday was over.
āOn the application form, do I just write chilli pepper tattoo?ā
āApplication form? Lily, itās Friday evening why in Godās name are you applying for the army now?ā I am only one glass of wine into the evening after a week of well, a lot. The only application form Iām interested in is for more wine or takeaway.
āCanāt this wait until another day?ā I know from experience that everything with Lily takes at least sixty million more aeons than planned.
āYou said you wanted me to move out.ā I say this every hour of every day, about the children, the dog, the plants and even the birds on the bird feeder. We all know who the problem is but they would starve without me - so there.
At 19 years old itās all good and she is ready to make a move. Since leaving college she has had a chance to work, earn some money and have independence but Lily is a unique soul and normality isnāt for her. She has always shown militaristic tendencies not only towards her long-suffering sister. It will be a good life and career.
Itās a tough one for us as parents, however. We have strong pacifist leanings and feel ambivalent about the armed services; even though my family have some history. There is also the idea of Scottish folk traditionally being used as cannon fodder for the empire and so on. This is the part where you have to step back from your stuff and allow your children to forge their own lives. But damn! It can be hard. Emotional acceptance and constantly adjusting to the changes of your offspring certainly keeps you on your toes.
As it turns out the army knows its audience and the form only takes two glasses of wine to complete. Now we play the waiting game. The interesting part is she had looked as if she might not ever get to this stage. Especially just last week when she was talking about moving into a flatshare. Kids are mercurial and led by the strangest things.
Take Daisy*, who is now 15 years, world doesnāt move fast enough for this child. I took her to Edinburgh for a few days this week and it went something like this:
On the bus passing through Dundee. āWhat courses do the art school offer here?ā
āUmm, hang onā I consult the phone. āThereāsā¦ā
āHow much would it cost to live here?ā
āErmā¦ā
āCould I get a job at the V&A?ā
āPossiblyā¦ā
āWhat is the theatre like?ā
Arrg. Every moment of her sweet life has been rammed to the gunnels with questions. Daisy is curious and usually wants the answer yesterday.
This is of course, wonderful but I feel like Iām on a waltzer ride. This series of questioning is applied to every city she can think of in Scotland. She is heading for the arts probably theatre and television - watch out commissioning editors a tornado is coming your way!
After three days in Edinburgh getting her home is tough. She is adamant she wants to stay, there is a teen tantrum brewing. It is a long three-hour bus ride with a truculent adolescent. Itās not that Aberdeen doesnāt have some charms but for a cosmopolitan, insatiable culture gobbler like Daisy, it is a wasteland.
Sometimes the choice we make for our children at a younger stage donāt fit so well as they grow. The security and ease of Aberdeen have perhaps run its course but moving isnāt an option just yet. Another little reminder that you can only do your best as a parent, we are not gods.
I am exhausted. Travelling with Parkinsonās is tiring, difficult and the stimulus of the city, people and excitement have floored me. But I still have to coach Daisy through the emotional frustrations of not having life immediately where she wants it. Eventually, we get home. She stamps her way back into the routine. Several hours later, after protest banging in her room, she emerges.
āMum?ā
āYes?ā
āThank you for taking me to Edinburgh,ā She snuggles up beside me on our sofa.
āYou are the best mum, ever.ā
*Not their real names. You can read more adventures of Lily and Daisy when they were younger in Tumbled.
Petās Corner
Each week - in the spirit of what the internet was built for - cute cats/dogs/hamsters/tarantulas.
Send me shots š Hit reply or email.
Thatās all folks!
Reading your door knob drama my immediate thought was we are soul mates! (red wine and a shared door handle hatred) I must go to Aberdeen and win her away from the large beaded social worker she lives with...then I had a doze and settled for going out for supper and sending this from a 253 bus...I hope it doesnāt get me thrown off substack
Door handles?! Don't talk to me about door handles. My arms are covered in bruises from our daily battles ...
I got a grant for my bathroom-to-wet-room conversion, but our flat is a housing association one. Could you not sell the grab rail to the landlord as an added value thing?
I can't get over "Lily" applying to the army!!! xxxxx