Bees-ness 🐝

Where Emma is a busy bee.

Hello, you delightful lot! Thank you so much for all the love and encouragement about the directory - we are up to nearly 80 entries…keep ‘em coming, please!

What am I on about now?! I am building a directory/hub thingy for Parkinson’s people.

It’s the resource you wish you’d had access to when first diagnosed. You know, the type of info that the medical folks don’t know or tell you. A place where you read, watch, and hear stories from other Parky’s. It’s crammed with humour, reassurance, raw honesty and LOVE—tons of the stuff.

In a week or two, there will even be a handbook to go alongside. 🤗

Of course, none of this happens without you…so pop over sign up, submit your stories, pages etc and SHARE the hell out of it!

Anyway. I might have gone a little manic.

When there is a modicum of dopamine available then all guns will blaze!

Will I collapse in a fatigued heap? Will every bit of my body scream with neuralgic burning pain? Will I lose the ability to do anything other than drool into my nice new jumper?

Yep.

Do I give a shit?

Not when the dopamine is running.

I know I’ll pay, but it’s that ‘grab it while you can’ effect we get when you are rationed. It’s one of the cruelest parts of chronic illness especially in Parkinson’s.

In these moments, I want to stamp my foot toddler style and scream ‘It’s not FAIR!’ Because it bloody isn’t. I don’t subscribe to the well get over it, life isn’t fair bullshit. Life by its very definition is abundant and non-judgmental. It’s us who applies the false deserving/undeserving nonsense.

My brain just didn’t get the memo on abundance. Somewhere my cells bought into the scarcity mindset or guilt-ed themselves into not allowing the full-fat version of dopamine. Dicks.

However, despite the shortage and the pain. I keep trying to over-abund (🤷🏼‍♀️)

Am I the only one? Please tell me that I’m not! Hit reply or comment.

So as not to weary you I shall keep this very short today. I have a few books to edit and finish writing, a podcast to record, a directory to wrangle, and a family to tend to…

Or I might just pick up a good book¹ and pour a nice glass of wine.

with love

E xxx

1. My current reading list:

• Orbital - Samantha Harvey | Seriously beautiful writing.

• Secrets of a Devon Wood: My Nature Journal - Jo Brown |Illustrated diary.

• An Autobiography by Anthony Trollope | Love a bit of Trollope

• Ten Arguments For Deleting Your Social Media Accounts Right Now

  Jaron Lanier | A re-read but even more pertinent.