Substacks recommended by Emma Stubbs | Who Stole My Dopamine?

Recommended by Emma Stubbs

A community for those dealing with the emotional challenges and psychological symptoms that frequently accompany Parkinson’s

Tiny Mindfuls

Simple moments of reflection, ritual and peace to help you slow down and start fresh every day.

Bella Figura Redux with Kamin

By Kamin’s Substack

My personal Substack revisiting the Bella Figura for a new era in Florence

My Personal Parkinson’s Journey

By Thom Peters

Parkinson’s Journey

A brilliant and thorough look at Parkinson’s. So few things are a real ‘journey' but PD really is!

- Emma Stubbs

Jeffji’s Big World

By Jeff Greenwald

Named after my pioneering 1994 travel blog, Big World will introduce you to fascinating people immersed in the arts and sciences, and reflect on the personal challenges introduced by my new traveling companion: Parkinson's Disease.

Stumble on Parkinson's

By Gerardo Torres-Castellano

Thoughts, short essays, and creative writing about living well (and some days, not so well) with Parkinson's disease. From Gerardo Torres Castellano, diagnosed in 2021 at 35 years old.

Essays and exploration about living with PD

- Emma Stubbs

Catherine’s Substack

By Catherine Pawson

Reflections and poetry inspired by the woods and moors, and my experiences in healing from Parkinson’s Disease.

The Dill Pickle

By Jennifer Sullivan

A naughty and honest newsletter about love, sex, and Parkinson’s disease.

Funny and vital! All things sex and PD. I love it!

- Emma Stubbs

Sarah’s Substack

By Sarah Lock

My personal Substack - a mixed bag ("a miscellany" to be fancy) about this and that

Diary of a YOPD

By Iain

Launched September 2024. Observations and things learned along the way from living with Young-Onset Parkinson's Disease, and living well.

A great read of Iain’s journey in YOPD

- Emma Stubbs

Adventures in Parkinson’s Land

By Parkinson's Land

A knockabout buddy tale of one man and his neurodegenerative disease, a webcomic by Matt Verguson. Now made even more ignorable through the magic of Substack.

Probably the best comic about Parkinson’s in the world...

- Emma Stubbs

Kent’s Substack

By Kent Peterson

I usually type about one page a day here on an old manual typewriter.

End Of The Line: A Parkinson's Progress

By From Nick Calder: End Of The Line episodes

Tales from trips to every end of line Tube station, notes on the progress of my Parkinson's, spiked with bits on life and death plus memories of London in 1960's - the whole mess served on a bed of sex, drugs and rock 'n roll.

There aren’t many writings that are ‘true' journeys but Nick’s everything-on-the-page idiosyncratic style will leave you laughing, crying and wanting more.

- Emma Stubbs

Matt’s Substack

By Matt Ross

A day in the life of a man living with Young Onset Parkinson's (and a wife, 2 kids and a dog)

- Emma Stubbs

Parkinson's for beginners

By Tony Parkinson

A mostly light-hearted newsletter about Parkinson's, with tips, complaints, moans, inspiration -- along with a smattering of honesty

Funny and honest, definitely worth a read

- Emma Stubbs

Hank Griffin Podcast

“Beautiful, East Texas” is a place, a state of mind, a state of being, and a canvas for Hank's stories. It is a great place to grow, experience, and begin to become. The stories of "Beautiful," unfold in the Hank Griffin Podcast.

Hey Sis—Down the Caregiver's Well

By Bette Jane

An epilogue, a series of letters to my dad and to you. On Parkinson's, art, caregiving, grief—and DIY, of course.

On My Feet with Grove

By Grove Ayers

Keep Moving. Report Back.

Written by one of the nicest people on the internet!

- Emma Stubbs

Me and My Tremor

By Neville Tencer

Join me on my journey with Parkinson’s as we explore current and potential treatment opportunities, and discuss the challenges living the fastest growing neurodegenerative condition. Opinions and other general musings are strictly my own.

All Parked Out

By Sree

My life living with Parkinson's Disease, ADHD and the search for my favorite chemical, dopamine.

YOPD & ADHD it's a wild combo brilliantly written about here

- Emma Stubbs

The Morning Julep

By Tommy Stringer

Discussing Parkinson's, Politics, Literature, Music, Religion and Such

A great read stuffed with lots of topics and a smattering of Parkinson’s.

- Emma Stubbs

P is for…

By Polliemath

Philosophizing. Parkinson’s. Poems. Polliemath.

A superb exploration of Parkinson’s on family, womanhood, identity and the brain.

- Emma Stubbs

Gary Sharpe's Articles

Trauma Healing, Symptom Reduction, Chronic Disease, Human Condition, Human Nature, Social Commentary, Cultural Issues. Lessons Learned in the Crucible of a Chronic Illness.

Parkinson's from an insiders perspective.

- Emma Stubbs

I’ve Got The Hippy Shakes

Parkinson’s, music, cancer, Trump and Travel

Parkinson’s & music perfect match.

- Emma Stubbs

slow trekkin’…

By neena maiya

…searching, searching...poking around the ghastly and the good, looking for truth, humour, beauty…writing about my discoveries…

Joyful, authentic and frankly, brilliant. Just sign up.

- Emma Stubbs

Methods and Madness

By Meredith Lewis

Notes about creative wayfinding between inner and outer worlds in a post lockdown era.

Creative mentor who's letters are filled with prompts, thought provoking snippets and support for create development.

- Emma Stubbs

Adventures with Dr. Parkinson's Shaking Palsy

By Piet Lammert

Living out loud with Parkinson's as my uninvited companion

Rory’s Always On Newsletter

By Rory Cellan-Jones

A tech notebook with a focus on health - and occasional glimpses of a dog called #sophiefromromania

Tech & Health...sometimes features #sophiefromromania rescue dog.

- Emma Stubbs

The View From Down Here

By Lucy Webster

What's it *really* like to be disabled? How can you fight ableism? A newsletter aiming to demystify disability through personal stories and observations, from journalist and card-carrying disabled woman Lucy Webster

The brilliant Lucy writes about demystifying disability and challenging ableism. Funny, vibrant and damned important - read!

- Emma Stubbs

Ending Parkinson's Disease

The latest news on Parkinson's advocacy

A journey with PD exploring all things, Parkinson's and life.

- Emma Stubbs