You gotta be kidney me…🫘🫘

Where Emma take a breath

Hello you delightful lot! I just have to say I’m a little overwhelmed at all the new faces here…hi! Drop me a reply and tell me about yourselves. This wee corner is made much better by us all getting to know each other xxx

Right, well. What. A. Week.

I say that a lot don’t I?

This time I mean - holy bananas batman.

My youngest daughter was taken to hospital with a weird kidney thing. It’s an infection with no known cause, just for the hell of it!

Anyway, it’s been a week of bouncing back and forth to the hospital as they pump her full of antibiotics and fluids, battling a raging fever.

She is home now and pretty much back to normal. 😮‍💨

Kids, they’ll get you every time.

Needless to say, I’m fucked. Yeah, yeah I know it’s not all about me. But it tends to be all about bloody Parkinson’s.

Damn! Did you know that for £1.25/$1.65 per week Who Stole My Dopamine can be YOURS…with all the set extra bits?!

A behind-the-scenes read-along as I write the Book and a free copy of the A-Z of Parkinson’s ebook

Plus more wine, swearing & daft stories…guaranteed.

I don’t know about you, but my PD gets over excited in a crisis. Now I do have a sort of super power that allows me to hold off the worst excesses when the shit hits the proverbial fan. To a point, I can keep going a deal with the necessary things but of course, this comes with a price.

This price will be a humdinger, I have no doubt. I already am crippled with worse than usual dystonia. I can feel the fatigue building sludge-like in my bones, the deep internal tremors rattling my muscles waiting to lurch out and spill my wine.

I know that I will have a period of time where I will lose faith in the process and believe that I am spiralling out of control and am at the worst-it-can-get stage. I know intellectually that it is not the case but it’s hard to hold to reason when you’re being shaken from your core.

A sustained week of being strong and on top of things will show how I am absolutely not. Mostly that’s just the vagaries of life that we all have to navigate. But chronic illness is a cruel mistress who likes nothing better than to stick her boney finger in our faces and point out where we are lacking.

Have I coped? Well, yes. Is my daughter well again? Yes. Will our lives slip back into the normal comfort zone? Yes.

So in some ways there is nothing to worry about. But I don’t know about you, but I just hate feeling crap. I am not lamenting what life throws at us - I am lamenting my lack of wellness.

I have discussed before the need to grieve when it comes to a diagnosis or even a sustained short term illness. And as I progress deeper into the realms of Parkinson’s, I realise there are many deeper areas that need our care and attention. The depth to understanding exactly what it is we lose and gain in chronic illness is a long and complex experience.

I would love to hear your experiences and challenges in dealing with the losses and gains of having a chronic illness.

In the mean time I am taking control of my wine rack, and enjoying planning the autumnal selections. Always looking for recommendations!

with love

E xxx