Consider the Lily...
Emma's daughter talks Parkinson's
Hello my lovelies, I’m shattered so Lily (you might know her from my memoir series - Tumbled) has taken over this letter.
Don’t forget the new chat feature…it’s great and allows our gorgeous community to stay in touch…especially with the decline of Twitter!
Hey, so it’s Lilly, the one and only. I’m filling in the post for today!
I’ve heard you guys are all kept up to date with my mum’s life nowadays. I swear she’s more tech-savvy than her 19-year-old daughter. And since you know about her days, whether they’re good or bad, I’m sure you can connect the dots; Today has been a rough day, she’s been redecorating the bathroom, and once my mum has got her mind set on something, I promise there is nothing stopping her. Not even Parkinson’s.
However with the decorating then running into town then stressing about other family members then getting back home, dealing with the dog, (and me obvs) then going back out to buy wine….yeah you get the point it’s been a bit of a day. That’s where I come in. I’m the kind of person who’s cool under pressure, I’m aiming for a medical field in the army, so this gives me some practice. Take that as you will. But seriously looking after mum is a teamwork kinda job, though she can do mostly everything herself; in fact, prides herself in it, she can’t always do so with the mix of work, and my teenage social life, I try and help out where I can.
Growing up in my early teenage years with Parkinson’s being a prominent figure in our family was a little tough to get used to, unfortunately, Ser Parkinson’s waits for no man. You have the move with it, it’s like water you can’t force your way into it. The currents with drag and pull at you, drown you at any moment. Parkinson’s works kind of the same as someone who observes my mum’s behaviour. You have to listen to what you need, and moving slowly, think about how you’re going to get somewhere when you can move the way you used to be able to.
If you are the observant sort you will have seen or read how she does everything a can man do, if not better. No offence guys ;) But she can, and honestly, I’ve been living with it for the past 19 years and I’m still scared and mighty impressed, as she casually starts painting an entire house with a bust wrist, or carrying a door out the 2 storey building while having a parky day.
So regardless of all that she doesn’t let it beat her and she moves forward, if slightly staggered, but forward nonetheless. Now I’m no expert in any way shape or form, I’m just her kid who’s been living with my mum and Parkinson’s - I’m just writing what I see. I hope that if any of her followers have kids that they might resonate with this.
So yeah I’m done now aha maybe you’ll get a surprise appearance from me again.
Until then, friends, Adios!!
Hi Lily 😁
I think you've inherited your mum's wordsmithery! I loved reading your piece, thanks for sharing! I'm so glad your mum has such a wonderful supportive daughter in you. I think living with PD makes you realise a lot about life and where priorities lie. Family and friends are right at the top! Love and best wishes to you and your mum
P.s. hope your mum is soon feeling better again, get that silicone kit away from her!
Good job, Lilly! Hope your mum's having a better day soon xxx