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Hello lovelies, I thought Iād try a new thing today. A mini podcast/audio thingy.
āSomedays I wish I was a unicorn and could stab people with my headā¦ā
If you enjoyed this nonsense you can always buy me a glass of wine š·
Here are the links to the stuff I mention:
Andiās blog post about pain.
Jessica Krauserās podcast where she talks about new pain symptoms
Later edit Hereās the transcript:
Hello and welcome to who stole my dopamine? Where I, Emma, witter on about living with Parkinsons and coping with a normal life, not ever having enough wine and resisting the urge to choke my kids.Ā Oh did I mention itās bloody half term here??? It feel like the kids never go to school or even have a full weekā¦blerugh. Somedays I wish I was a unicorn and could stab people with my headā¦.
Anyway I thought Iād follow some good advice today. I know I am as shocked as you are!Ā We all know that pwp can have vocal problems and we should be doing exercises (I mean seriously⦠more bloody exercising doe sit ever stop???) ahemā¦to strengthen vocal chordsĀ and all the good stuff, right? Yeah so mostly singing is suggested which is why I am going to present this is musical formā¦..ahhhhhh
OK Iām not that cruel. I think my singing was once described as āplease donāt. If I sang this youād be running for the hillsā¦and maybe screaming. Hey! Now that would be an excellent parky work outā¦only the best for my darling readers.
So I shanāt be singing. but I figured chatting isnāt too bad?
Bit of a disclosure I ermm didnāt actually do this for the benefit of my voice, Iām in pain so typing and sitting too much for this body.Ā I am also recording the as dictating with my swearing and accent results in so many mistakes that it sort of defeats the purpose of making life easier!
Itās been a WEEK! Imagine that in big capitals. I woke up after having dreamt Iād broken my wristā¦like proper bones sticking outā¦the whole caboodle. My dystonia in full rock and roll mode that the pain woke me. To be honest itās still so sore not unlike when I broke it a few years back. OK so. That was fun.
Then the next night I dreamt both wrists were being knawd on by giant spiders with appropriately giant fangsā¦.again I woke with my hands so tightly bunched with the dystonia. I want to point out I am one of those odd folks who actually likes spiders so who teh hell knows why that seeped into my subconscious!!
Then I was out shopping and my left leg near as collapsed under weakness, ridigity and extreme dystonic painā¦I seriously wasnāt sure I was going to get homeā¦thankfully I had my daughters with me so I had to be brave and not break down in a sobbing mess.
These are quite new levels of fresh pain and in new placesā¦I am wrung out dearests.wrung out.
However I am not alone. Andiās blog landed in my email and she talks about a strange phantom pain which stems from pressure on the nerve, which sends an abnormal signal to the brain. Which is suggested to be āa sign that the spirit realm is trying to communicate with you.ā
Well I can tell you if the spirit realm is trying to communicate via broken bones & spiders it can just fuck off.
Some one directed me to the podcastĀ āThe secret ;life of Parkinsonāsā where in the latest episode Jessica talks about coping when a new parky pain pops up. She comments that we have forgotten about the pains that often lead to our diagnosisā¦we have adapted to it but to get a new pain in a new area is another mountain to climb.
Itās also a ramming home of the progressive nature of this damned disease. You know what?Ā Iām not wild about it.
Quick break: This is brought to by the mating seagulls of Aberdeenā¦we live in the city centre and they nest on our flats. Currently they are at flirty matey stage its the hatchling stage that kills usā¦constant demands for food from fluff balls yelling at a million decibels does not make for restful days or nights. Much like my own DNA spill.
I know I should be questioning why such a sudden glob of pain and sleeplessness and extra weird dreamsā¦I mean even for my warped pschye these have been odd.
But you know what I canāt be arsed. That isnāt fatigue talking (well it might be but) itās more that really am sick of Parkinsonās this week. The relentlessness is boring.
Iām going to overload on lemon chicken noodle soup and curl up with a movie. At least for 5 mins until I get stuck and dystonic againā¦grrrrowl.
Your Parkinsonās Tarot Card of the weekā¦yes I just created a fictional tarot deck about Parkinsonāsā¦
The Fool or Mr Parky - Our hero. First steps, new journey, hasty choices: Less spring in your step more a stumbling shamble. You are bound to make plenty of mistakes on your new journey but your shiny enthusiasm will keep you going. Be wary of difficult symptoms ahead.
With love until next timeā¦
Taco About it š®š£ļø
So lovely to hear your voice again!
If I could wave a magic wand... *hugs"
So sorry itās been such a rough week ... and those dreams sound horrible. I hope tucking up that yummy soup and a movie helps to put Mr P in his place. Great to hear you ... big hugs š