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Heather Cawte's avatar

HESELTINE?? Oh, Emma, things are worse than I thought….xx

Your girls are wonderful. As is my son. And no, we didn’t want this for any of them, but here we are. I wish we were both well again. I’m with you in spirit, at least.

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Emma Stubbs's avatar

hahah! I know I am terrified what my politically addled brain might produce next!! And yes they are and so is R xx biggest love

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Maggie Hollingsworth's avatar

Oh Emma, you are a magician with words. You describe precisely the trials, tribulations, fears and occasional laughter that come with Parkinson’s. I read your post with tears in my eyes. Thank you.

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Emma Stubbs's avatar

Aww thank you! And you are so welcome xxx

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Faith for All's avatar

First off: Give Maureen a pet for me. I cannot have pets where I live, and I have not been blessed with even an imaginary cat or dog...yet. (Although there was that vivid dream about a bear doing advanced math on my kitchen wall. Does that count?) My pet desires are infrequently appeased by visiting my granddaughter and snuggling with her cats and rabbit.

By the way, although I was diagnosed far later and am a couple decades older than you, I firmly believe you are a good example of continuing to (forgive the cliché) live and laugh and love, and you are someone I appreciate as a fellow parkie. Like your girls, my housemates are very compassionate, and they frequently step in to assist when PD stalls me.

Occasionally, one of my friends gives me a look as if to say I don't look like I have Parkinson's. Then again, they don't see the old man shuffling around in the morning like I am trying to build a static charge from the carpet. Zap!

Be blessed, fellow traveler!

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Emma Stubbs's avatar

haha! Thank you! What a lovely reply and love to you xx

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Nancy in Oregon's avatar

I think I most definitely love you. You are ahead of me in this Parkinson's game. Grief is becoming a way of life. My husband has Mild Cognitive Impairment mixed with ADHD. Neither of us can do what we did years ago. The struggle is daily, for us individually and us as a 54 yr old married unit. Thank you for your writing it dulls the pain a bit.

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Emma Stubbs's avatar

Aww I love you too xxx Hugs to you both. My partner has diabetes which is currently well managed but the future is wobbly for us both. Having said that we have each other and are able to watch the girls grab life with joy. xxx

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Sarah's avatar

Hi dear Emma

Is there a word that describes laughing and crying at the same time? That's what l felt when reading your latest post.

Your daughters sound lovely and l know what you mean: we didn't want this for ourselves and definitely not for our loved ones.

But this is it.

I think that you're absolutely an example of 'new Parkinson's'. You're creative, talented, and enterprising- and have a great sense of humour, of course! So l can understand that your family is very proud of you.

What's the WhatsApp group called? I try to be creative too, now and then, and would like to join.

Sending love ❤️ Sarah

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Emma Stubbs's avatar

sobhaha? Thank you for your lovely words :) here’s the link: https://chat.whatsapp.com/HXkKruXbvxY7yuEhhME4Mb?mode=r_c

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