Is the PD memoir world really oversaturated? I love your writing and will keeping reading and supporting it here ❤️ But taking a memoir off your plate is huge in terms of stress....I have been writing mine for 2 1/2 years and am so so close to being done. But mine isn't just about Parkinson's. Hope you are feeling better! XO
I think that my writing here is enough without crushing it into book form ahaha. I would rather write about my art and travel experiences and life than PD as well! Can’t wait to read yours xxxxx Feeling much better thank you
Well. Yes. It must be bloody hard. I am lucky in as much that l'd nearly reached retirement age when diagnosis hit. Not that l felt very lucky at the time....worked all my life and bam! No happy retirement travelling the world for me. But l don't think like that anymore. I realise that others have it far more difficult.
You are so talented and creative. I'm in awe of your energy and achievement! There are several amazing PwPs: you, obviously, but people like Carl Beech and Barbara Salsberg Matthews make me think, well, if they can do it...so can l to some extent. I'm not going to use the word 'inspiring' because I know you disparage it. But hey, you get me aspiring to do more.
Sorry l've gone off at a tangent! Thank you for al you do. I hope you find more ways to support yourself and your family. God knows, you deserve it.
I'm in the process of being transferred from ESA to Universal Credit.
I've had 25 years of top rate DLA, for an indefinite amount of time, followed by a transfer 3 years ago from DLA to the top rates of PIP for ten years (the longest amount they award PIP for). Most of that time (once Incapacity Benefit was scrapped) I've also been on the non-working type of ESA, awarded for an indefinite amount of time.
I was awarded all these after doctors' reports and assessments. 28 years, following doctors' assessments.
This week, Universal Credit asked me to get a Fit Note from my GP.
28 years. And now I need a doctor's note. I feel utterly ignored and invisible.
Is the PD memoir world really oversaturated? I love your writing and will keeping reading and supporting it here ❤️ But taking a memoir off your plate is huge in terms of stress....I have been writing mine for 2 1/2 years and am so so close to being done. But mine isn't just about Parkinson's. Hope you are feeling better! XO
I think that my writing here is enough without crushing it into book form ahaha. I would rather write about my art and travel experiences and life than PD as well! Can’t wait to read yours xxxxx Feeling much better thank you
Hi Emma
Well. Yes. It must be bloody hard. I am lucky in as much that l'd nearly reached retirement age when diagnosis hit. Not that l felt very lucky at the time....worked all my life and bam! No happy retirement travelling the world for me. But l don't think like that anymore. I realise that others have it far more difficult.
You are so talented and creative. I'm in awe of your energy and achievement! There are several amazing PwPs: you, obviously, but people like Carl Beech and Barbara Salsberg Matthews make me think, well, if they can do it...so can l to some extent. I'm not going to use the word 'inspiring' because I know you disparage it. But hey, you get me aspiring to do more.
Sorry l've gone off at a tangent! Thank you for al you do. I hope you find more ways to support yourself and your family. God knows, you deserve it.
Sending love, Sarah
Aww thank you Sarah! I have it a lot easier than many :)
I'm in the process of being transferred from ESA to Universal Credit.
I've had 25 years of top rate DLA, for an indefinite amount of time, followed by a transfer 3 years ago from DLA to the top rates of PIP for ten years (the longest amount they award PIP for). Most of that time (once Incapacity Benefit was scrapped) I've also been on the non-working type of ESA, awarded for an indefinite amount of time.
I was awarded all these after doctors' reports and assessments. 28 years, following doctors' assessments.
This week, Universal Credit asked me to get a Fit Note from my GP.
28 years. And now I need a doctor's note. I feel utterly ignored and invisible.
Oh my god that is so awful, I am so very sorry xxx. Love and huge hugs xx