🎯🎯🎯. It’s the amount of pre-planning that goes into every damn thing. I’d arranged to call my brother last night (haven’t talked in ages). Picked the “perfect time” meds wise, and…they just didn’t kick in. The firework that doesn’t go off. I persevere with the call and I’m an incoherent mess. Could hear the shock in my brothers voice. I end the call early and I’m literally dripping with sweat.
You can’t stage manage your life with PD. Maybe it’s time I stopped trying.
It’s so frustrating! I feel your pain. That’s another bit that is so tough...the look in people’s eyes or shock when it dawns on them how horrifically ill we are...some days!
Love and all goo thing to you...keep going lovely, we are all in this xxx
PD is truly the illness that is hidden in plain view….we hide it, our loved ones try to hide their concern, frustration, helplessness from us, and the outside world doesn’t care to look hard enough to see anything. I’m sitting writing this as I wait for meds to kick in as they were meant to half an hour ago so I can ta’e my son to an open day. Bloody typical. I feel your pain and anger and I add mine onto the bonfire. Thanks xx
On the bloody nail as always Emma. A treat to read your rolling prose. And a strange comfort to be taken from the neat way you capture the awfulness of living with the wretched Parkie thingy. We’ll drink a cup of kindness yet…xxx
🎯🎯🎯. It’s the amount of pre-planning that goes into every damn thing. I’d arranged to call my brother last night (haven’t talked in ages). Picked the “perfect time” meds wise, and…they just didn’t kick in. The firework that doesn’t go off. I persevere with the call and I’m an incoherent mess. Could hear the shock in my brothers voice. I end the call early and I’m literally dripping with sweat.
You can’t stage manage your life with PD. Maybe it’s time I stopped trying.
Take care of you.
Graeme
It’s so frustrating! I feel your pain. That’s another bit that is so tough...the look in people’s eyes or shock when it dawns on them how horrifically ill we are...some days!
Love and all goo thing to you...keep going lovely, we are all in this xxx
PD is truly the illness that is hidden in plain view….we hide it, our loved ones try to hide their concern, frustration, helplessness from us, and the outside world doesn’t care to look hard enough to see anything. I’m sitting writing this as I wait for meds to kick in as they were meant to half an hour ago so I can ta’e my son to an open day. Bloody typical. I feel your pain and anger and I add mine onto the bonfire. Thanks xx
Thank you and biggest hugs xx
Thank you
Thank you for being here xx
Still struggling with these suggestions - since 1997. It's a bit like imposter syndrome, especially when people get bored with you being ill....
Realised the other day that all but two of my closest friends have chronic illnesses. I wonder why!!!
Yes, I find it’s so much easier to relate to the chronic illness clubies than ‘normals’ these days!
On the bloody nail as always Emma. A treat to read your rolling prose. And a strange comfort to be taken from the neat way you capture the awfulness of living with the wretched Parkie thingy. We’ll drink a cup of kindness yet…xxx
Thanks Nick xx Cheers to you xx