Hello you delightful darlings. Iβm so touched to see the new faces here as well, thank you. Your support means so very much xx
So, Iβm painting again. Or rather, Iβm wrestling the bastard who stole my dopamine back into the cupboard and slapping some paint on panels.
Letβs be absolutely clear: Iβm not sticking bits of pottery onto canvas like some Pinterest craft project. Iβm painting images of sea pottery fragments. Tiny, meticulous oil paintings that make people squint and go, βOh, I thought that was an actual shard!β Thatβs the whole point: to give these broken pieces new life through paint.
Post-Parkinsonβs diagnosis, every brushstroke is an adventure. My hand doesnβt always show up for work, which makes me feel like Iβm holding a paintbrush attached to a pogo stick. But these paintings arenβt just about fighting the tremor. Theyβre about fighting the apathy that Parkinsonβs kindly throws in as a bonus prize. The part of my brain that used to be a cheerleader is now more like a sulky teenager: βWhy even bother?β But if I donβt, the disease wins. And Iβm not ready to hand over my paintbox just yet.
Itβs not just the physical and mental fatigue, though. Itβs the creeping invisibility. The sort that comes not only from chronic illness, but from being an older woman (Iβm 49). Letβs face it, society has always been a bit shit at seeing women as they age.
Weβre the ones who hold it all together, often unnoticed, until we vanish behind the scenery. And Parkinsonβs doesnβt help. Itβs a disease thatβs still largely misunderstood, especially in women, who are under-researched and misdiagnosed at alarming rates. So yeah, Iβm painting fragments of crockery, but Iβm also painting the bloody truth about how weβre so often left out of the frame.
These pottery fragments? Theyβre metaphors. Theyβre about survival. Theyβre about holding onto whatβs precious, even when itβs cracked and worn by the tide. I see myself in themβ¦still here, still functioning, even if Iβm chipped and a bit sea-beaten. And painting them is my way of telling Parkinsonβs to piss off for a minute, to let me focus on the beauty of what remains.
You know what helps? The shared studio. I used to be so driven I never needed external validation. I was a one-woman band of creative rocket fuel. But now? I need the clatter and chatter of people around me. Itβs become a weirdly essential medicine: the visibility of others seeing me, the conversations that remind me Iβm not just a diagnosis in a dusty medical file. Itβs funny how you only realise how lonely Parkinsonβs can be when youβre in a room full of people who arenβt. And turns out being seen matters. Itβs the antidote to the grey of apathy.
Tiny oil paintings of sea potteryβ¦each one a little prayer to the idea that weβre never really lost. Weβre fragments, sure. But weβre still here.
If youβre around, come see the work. And if youβre not, just know that even when Parkinsonβs is whispering βwhy bother?β in your ear, you can still stand up, grab the brush, and start again.
with love
E xxx
Exhibition Details
This is being held in Scotland and I know most of you are elsewhere in the world so I am hosting an online exhibition as wellβ¦
And you are all invited! Itβs totally free.
All you have to do is add your email to the list and you will have access from the 21st June until infinity! If you feel like a peek at what Iβve been up to then please follow this link :)
Your support and cheering me on really helps. Thank you π
Stunned by the power of your writing and the beauty of the idea of painting these worn wee time capsules and exquisite execution..
I loved reading your words that so skilfully weave together your Parkinsons experience and your lovely creative work - all shot through with a good dose of feminism. Thank you.