I’m wonton more...🥟

Where Emma talks cures

Welcome & ooo thank you for the lovely comments about the mini-podcast, love you lot!

Pancakes are a legitimate cure-right?

Here’s the thing: finding a cure for Parkinson’s isn’t exactly on my daily to-do list.

Of course, it’d be nice.

If some brilliant scientists happened to stumble upon a magic potion tomorrow, I’d be the first in line. But I’m just trying to make it through today, which means dealing with right now, not waiting for some hypothetical miracle cure.

Look, a cure is that’s always dangling like some rare fruit. But in the meantime, we’ve all got plenty of real-world stuff to handle. Like getting the kids fed, making it to my desk on time, and, you know, remembering where I put my phone (and if it’s not lost, figuring out where I left my charger).

Life doesn’t exactly pause because I’ve got a Parkinson’s diagnosis. In fact, it’s more like life says, “Oh, you’ve got extra challenges now? Let’s see if we can make it a bit fucking harder.”

Frankly, a little help with symptoms would be a far better gift than that far-off cure. Would it kill someone to make pills that are actually easy to open? Every day I wrestle with these bastarding blister packs. I can’t tell you how many times I’ve sworn loudly, wished I had pliers, and eventually resorted to gnashing at it with my teeth. Sometimes, I consider giving up on the pills altogether because I don’t have the energy for a hand-to-hand combat session with medication. Honestly, if anyone wants to give the Parkinson’s community a hand, maybe start with some packaging that doesn’t require a team of professionals to open.

And then there’s just the day-to-day management of symptoms. While a cure sounds great, what I’d really appreciate are things that make the symptoms a little less relentless.

Meanwhile, while science works on that elusive “cure,” I’ve got laundry piling up, kids to corral, money to make, writing to writ (?), and a little sliver of me-time to salvage. Parkinson’s might have come along for the ride, but that doesn’t mean it should get to be the star of my life every single day.

And let’s be real, if we’re in this for the long haul, I’d rather focus on making each day easier. Small wins, you know? A little more energy here, a little less stiffness there and maybe fewer aches in the middle of the night. I’d love for my hands to do what I tell them without making a scene when I’m just trying to eat soup in peace.

A cure would be ultimately good but as I sit here, trying to open a blister pack that’s probably laughing at me, I’m thinking: maybe tackle the basics as well?

Your thoughts are always welcome! Comment, message or smoke signal.

with love

E xx

P.S. You might have noticed I have started a mini-podcast, mainly for paid folks but occasional ones for freebies too! Let me know what you think after a 5-minute listen here.