Oh Emma, this is so recognisable. I know what you mean about PD being a 24/7 obsession for those of us with it. It's just always in our face! No escape possible. It's lonely because, in the end, we have to deal with it alone. That's why the PD community is so important. Only by having the disease can anyone possibly understand what it's like to live with it.
There's one thing though, l don't think you could ever be boring if you tried! And another thing....thinking back to my kids as teens, well EVERYTHING l did was boring to them! It's just the way of the world.
You are wonderful. Look in the mirror and repeat 10 times twice a day. Or three times. Lots of love ❤️
I understand part of this so very well. So often, I get, "But why can't you come? You won't catch COVID, that's all over now..."
If I had a pound for every time a friend has tried to get me to attend a party, a workshop, a lunch....well, I could afford some of those fancy N95 masks.
I already have a post-viral thing that I've had since 1997, and dodgy lungs, and a dodgy heart. Why do I want more of them? Just because they're bored of my not attending things, on medical advice, doesn't mean that COVID is over 🤬🤬🤬🤬🤬🤬
Sorry, that was incoherent. What I mean is, my friends get frustrated with me not being available to them now, and act as though I'm being unreasonable, when actually I would love to go back to my former social life. I just *can't,*, and it drives me crazy xxx
I completely understand! It’s so demoralising to have say no, sorry time after time to offers and suggestions. It’s a very slow educational trip that is exhausting to keep reiterating! No wonder we end up isolated.
Oh Emma, this is so recognisable. I know what you mean about PD being a 24/7 obsession for those of us with it. It's just always in our face! No escape possible. It's lonely because, in the end, we have to deal with it alone. That's why the PD community is so important. Only by having the disease can anyone possibly understand what it's like to live with it.
There's one thing though, l don't think you could ever be boring if you tried! And another thing....thinking back to my kids as teens, well EVERYTHING l did was boring to them! It's just the way of the world.
You are wonderful. Look in the mirror and repeat 10 times twice a day. Or three times. Lots of love ❤️
Thank you Sarah! We need to bottle your joy and positivity 🥰
I understand part of this so very well. So often, I get, "But why can't you come? You won't catch COVID, that's all over now..."
If I had a pound for every time a friend has tried to get me to attend a party, a workshop, a lunch....well, I could afford some of those fancy N95 masks.
I already have a post-viral thing that I've had since 1997, and dodgy lungs, and a dodgy heart. Why do I want more of them? Just because they're bored of my not attending things, on medical advice, doesn't mean that COVID is over 🤬🤬🤬🤬🤬🤬
Sorry, that was incoherent. What I mean is, my friends get frustrated with me not being available to them now, and act as though I'm being unreasonable, when actually I would love to go back to my former social life. I just *can't,*, and it drives me crazy xxx
I completely understand! It’s so demoralising to have say no, sorry time after time to offers and suggestions. It’s a very slow educational trip that is exhausting to keep reiterating! No wonder we end up isolated.
Totally with you Emma. Hugs. The good kind.
😘